Other Support and Links
Early Childhood Connections
Early Childhood Connections is an Australian website providing links to the most up to date information for professionals and parents interested in the renewed emphasis on the early childhood years. The Links Directory is grouped under categories and sub-categories, listed alphabetically, to provide easy viewing and access for visitor use.
Access Economics Report
Click here to download the Access Economics Report on the Economic Impact of CP in Australia in 2007.
Aging occurs earlier for people with CP, and CP has a higher disability burden than being blind, deaf, or having heart failure or localised cancer. This report recommends more research into the cause, care and cure of CP; education and support programs for mainstream health services to assist with early diagnosis; coordinated management strategies; employment programs; policies to assist carers; appropriate accommodation; better assistance with transport, equipment and home modifications; methods for long term financing of health and disability care needs; and services for disadvantaged groups.
Carers Australia represents the needs and interests of carers at the national level, and is hosting a number of events in the latter half of 2008.
National Carers Week is held annually in October each year. This year, National Carers Week runs from October 19-25 with the theme of '...because I care'. For more information on National Carers Week 2008 click here.
Carers Virtual 2020 - Based on Australia 2020 concept, Carers Virtual 2020 will be encouraging carers and members of the public to develop big ideas on a range of carer issues. Contributions to Carers 2020 will be turned into a qualitative report, to be presented to Government at the national launch of Carers Week 2008.
Click here for more information, or visit http://www,carers2020.com.au/.
Bring it! Young Carers Forum - Bring it! will be held over two days in November 2008 at Parliament House in Canberra. As well as being an opportunity to look at the latest research, the Forum will feature workshops involving service providers, policy makers and young carers.
The selected group of young carers who attend Bring it! will also take part in a leadership program to help them become mentors for other young carers and to represent young carers in public. For more information click here.
Have you the cheek to help with cerebral palsy research?
The Australian Cerebral Palsy Research Group invites children with CP and their mothers to provide a cheek swab to investigate the possible genetic causes of cerebral palsy. The research group is seeking 2,500 Caucasian families nationally, and participation is easy and painless. For more information visit www.adelaide.edu.au/cerebralpalsy.
Raising Children Network
The Raising Children Network is a non profit organisation made up of three consortium members, the Smart Population Foundation, the Parenting Research Centre and the Centre for Community Health Care.
The Raising Children Network is for Australian mothers, fathers, grandparents and anyone else who has responsibility for the care of children. The website aims to meet the information needs of a wide range of users, from the just curious, to those looking for assistance with particular problems or issues, or those wanting to explore the science behind modern thinking on the care of children. Click here to view the Raising Children Network's section on raising a child with a disability.
Medication Administration for the Disability Sector
The Medication Administration for the Disability Sector Project has been developed as a joint initiative between The Centre for Cerebral Palsy and the National Disability Services (NDS) Accommodation Subcommittee. This report is designed to provide information about best practice systems for medication administration within the disability sector and discusses different types of medication administration aids, their benefits and disadvantages, with a focus on Sachet and Blister systems.
Disability Web Portal
The Australian Government's website links to information and services on over 700 websites, searches over five million government web pages and also offers selected state and territory resources.
A national disability internet portal is now a part of the Australian Government's website.
This portal functions to provide coordinated access to a range of online disability-related information and resources including:
Link Disability Magazine
- Carelink Centres and Directory
- CRS Australia;
- FaCSIA including Business Services;
- Disability Open Employment Services;
- Disability Rights;
- Useful links for individuals and communities; and
- National Auslan Booking and Payment Service (NABS).
Link Magazine is full of information for people with a disability, their family members and carers, as well as professionals in the field. Click here to visit their website.
Information about Community Resources
Community Life is a website that provides extensive information about services and support from government agencies and community organisations. There are many links to key sources of information on topics such as:
You can learn more about cerebral palsy and disabilities by going to these websites:
- getting about
- health recreation
Commonwealth State/Territory Disability Agreement
Read about the latest news about the Commonwealth State/Territory Disability Agreement from CP Australia.
Continence Management and Advice Service
Read more about the WA State Government's new Continence Management and Advice Scheme.
Children and Young People with a Disability in Western Australia
Read more about the National Disability Services' paper "Children and Young People with a Disability in Western Australia".
ABC Ramp Up Website
Ramp Up is the ABC website dedicated to news, stories, videos and humour regarding disability.