Pathways to Excellence - Living with Cerebral Palsy
This section includes projects and reports about children and adults with cerebral palsy (CP) and their families.
Major reports about CP and Disability
Australian Cerebral Palsy Register Report 2009
World Health Organization Report on Disability
Disability in Australia: multiple disabilities and need for support
A Picture of Australia's Children 2009
Therapy and equipment needs of people with cerebral palsy and like disabilities in Australia
The Economic Impact of Cerebral Palsy in Australia in 2007: Report by Access Economics Pty Limited for Cerebral Palsy Australia
Projects at TCCP
Completed in 2011
An Investigation of Attentional and Motor Deficits in Children and Adolescents Using the Monozygotic Co-twin Control Design
A series of studies investigating the relationship between movement and attentional deficits, depression, perceptions of family functioning and the twin relationship in idential twins.
To Feel Belonged: the voices of children and youth with disabilities on the meaning of well-being
Information from focus groups and interviews with children and youth with disabilities about what makes a good life.
Completed in 2010
A website linking to useful websites with information about disabilities, services and supports.
Completed in 2009
Activity Participation of Young Adolescents with and without Physical Disabilities
A survey of 582 young adolescents, asking them about the activities they do, and investigating similarities and differences between those with and without physical disabilities. Four tips sheets are also available:
Understanding development and disability in Middle Eastern and Asian families
Information about the cultural philosophy of Middle Eastern & Asian groups towards developmental norms and disability. For translated information for parents click here.
Completed in 2008
Active citizens or passive recipients: How Australian young adults with cerebral palsy define citizenship
Interviews with nine young adults with cerebral palsy exploring their perceptions of citizenship experiences
Citizenship – Towards the final frontier
A self-directed package that empowers adolescents and young adults by facilitating access to knowledge, skills and the opportunity to become fully participating citizens
The DVD creates an opportunity for parents to raise discussions with siblings about experiences related to ‘family life’, ‘medical matters’, ‘therapy’ and the ‘future’.
Completed in 2006
Family to Family Respite Experiences
A resource booklet for families that collates the narratives of families and adolescents using in and out of home respite services of The Centre for Cerebral Palsy
Completed in 2005
Cerebral Palsy and Co-morbid Conditions: What Facilitates Major Caregiver Coping?
A study of the burden of care reported by parents of children with cerebral palsy and factors that help and hinder coping.
Focus on Fathers
A booklet describing the experiences of fathers of children with cerebral palsy living in rural areas.